Saturday, March 13, 2010

Preparing for 2010 Conference

The June conference will be the best ever. Excitement is mounting as the time draws closer and travel plans are a work in progress. I traveled to California last week for meetings and some final conference preparations. It will be great. The weather should be warm in the upper 80s with zero humidity making it easy for us to breath. Starting June 1st I am going to slowly start adjusting my sleep pattern since CA is 3 hours behind the East Coast. I want to be awake and enjoy every minute there. See you in sunny CA.

Being Part of Path to a Cure

Piedmont PH Support Group had 12 patients, family and friends show up for our Path to a Cure Unity Walk that was held February 23, 2010 at Hanes Mall in Winston-Salem, NC. Thanks to Barbara Hockaday, manager of the local Accredo office for providing sandwiches and water. $425 was collected to support the efforts of Dr Frantz, Dr Benza and Jessica Lasar to not only increase PH awareness but raise research funds to find a cure. Thanks--we really appreciate being part of this event.

Arrangements were finalized for Wednesday February 24, 2010 for our conversation with the mountain climbers. As the time drew near a call came in explaining how sick the group was and the call would need to be rescheduled. The window of opportunity was not very big. The following day the conference room was not available and Friday I had an appointment with a new cardiologist which was already put off once. (The doctor rescheduled so he would have more time to go over all the records. LOL). By the time it could be rescheduled the guys would already be well off the mountain.

To my surprise Jessica from PHA called mid morning on Thursday, February 25th. Dr Benza and Dr Frantz checked in with them. Jess wanted to try to patch the call to me. This was so unexpected but so exciting--totally unexpected. We had a great conversation talking about many different things from our walk, the snow, the beautiful view, climbing the mountain, being SOB. Thanks so much for sharing your adventure with us.

We are not only thankful that all three of you made it home safely but for your efforts to combat this disease.